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EXCLUSIVE: Helen Stephens, 50, from Wednesbury in the West Midlands, has suffered excruciating spasms for the past 14 years. Before she developed the condition (inset) she was a busy mother-of-three with a successful career as a social worker. An attack causes her muscles to swell and feel as if they are tearing. Until recently, doctors believed she suffered with Stiff Person Syndrome, an incredibly rare condition that causes the muscles to harden and shake. But this has never been confirmed and she needs a formal diagnosis to undergo risky but life-changing treatment for the condition. The new Channel 5 documentary follows her quest to get answers about her strange and debilitating symptoms.

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